Six people touched by lupus, either as sufferers or as family members, share their lupus stories with us, to show how different and unlikely each individual lupus journey can be.

Mary’s Lupus Journey

Hello everyone, I’m Mary. I’m a daughter, a sister, an aunty, a friend. I’m a wife to my awesome husband Peter and a mum to my beautiful four legged boy, a golden retriever named Shandy….and I have Systemic Lupus Erythematosus (SLE), more simply known as lupus…. but...

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Jenny’s Lupus Journey

Hi my name is Jenny. I am a 60 year old woman who has been living with lupus for over 30 years. My journey with Lupus began in mid-1985 after the birth of my daughter in December 1984. Initially I put all my symptoms down to my new experience of...

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Caroline’s Lupus Story

My name is Caroline. I am in my 60’s and have been retired since 2015. My husband and I have a large blended family of adult children and adult step children. My current claim to fame is that I have 14 beautiful grandchildren! In my working life I was a...

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Mark’s Lupus Journey

Hi my name is Mark. I'm 54 years young. I'm a husband and a father of two great kids I'm a plumber and love my job. In the beginning I didn't know what I had. Doctors just fobbed me off for years. Then after I moved from the U.K to Australia I got a new...

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Jules’s Lupus Journey

My first lupus flare two years ago landed me in hospital with a variety of unusual symptoms that doctors diagnosed as viral meningitis. It was the first time I had experienced anything like it, and as a 31 year old woman focussed on my career, it was a...

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Eddie’s Lupus Journey

I am Eddie Phillips. I am a 58 year old retiree and primary carer for my wife Julie, who has suffered with lupus for over 30 years. A synopsis of my journey so far Julie was diagnosed with Polymorphic Light Eruption (Discoid Lupus was not a diagnosis back...

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