ABOUT LUPUS WA
WHO ARE WE?
Lupus WA is a voluntary not-for-profit
We were formed in 1979 and became an incorporated body in 1986. Previously we were known as the Lupus Group of WA and became Lupus WA in 2017.
Our overarching aim is to provide a gateway in Western Australia for improving awareness, education
OUR TARGET AUDIENCE
Our target audience is three-fold:
• lupus patients and their family/caregivers;
• the general community; and
• health professionals.
OUR KEY AREAS OF FOCUS
Our five key goals are:
To increase public awareness, early diagnosis and treatment; and to engage public interest and support for lupus related activities.
To promote knowledge and understanding about lupus to people living with lupus and encourage them to become ‘active’ participants in their own health and wellbeing; and
To promote knowledge and understanding about lupus amongst healthcare professionals in order to support
To provide peer support to people living with lupus, their family and care givers and to share lessons learned from “lived experience.
To support State, Commonwealth and International lupus research collaboration and alliances.
To advocate for lupus awareness, education, support services and research in WA.
INTRODUCING OUR BOARD
Our board brings together a wide range of experience and skills. We are collectively committed to improving lupus Awareness, Education, Support, Research and Advocacy in Western Australia.
Our Board Members are:
CHAIRPERSON W/Prof Hans C Nossent - MD PhD FRACP
Originally from the Netherlands where he received his medical training, and following a multinational work journey, Prof Nossent now holds the Chair in Rheumatology at The University of Western Australia and heads the Dept. of Rheumatology at Sir Charles Gairdner Hospital.
Through his clinical work and through teaching medical students Prof Nossent actively works to improve the understanding and management of rheumatic diseases, which have
Professor Nossent has a major clinical and translational research interest in
TREASURER Andrew May
BOARD MEMBER Dr Aron Chakera - MBBS (Hon), MRCP, DPhil, FRACP, FHEA
In 2008 he was appointed to the Clinical Lectureship in Nephrology at the University of Oxford where he developed a translational research programme focussing on autoimmune diseases and functional measures of immunity.
In 2012 he returned to Sir Charles Gairdner Hospital as a Consultant Renal Physician with clinical and research interests in autoimmunity and immunosuppression.
BOARD MEMBER Mary Erceg - Dip Ed, BEd
Mary Erceg is a former teacher and Public Servant in the State Government in senior policy and planning roles in the Education, Training and Workforce Development sectors. She brings experience in stakeholder engagement, strategic planning and policy/program development to the Board.
Mary has lived with Systemic Lupus Erythematosus (SLE) for more than four decades since initial diagnosis in 1973. She knows first-hand of the many and constantly evolving challenges faced by patients, their families
Mary draws on lessons learned from over forty years of “lived experience” to support others to become lupus wise and live better with lupus. She is a passionate advocate for improving lupus awareness, education, support, research and advocacy in Western Australia.
BOARD MEMBER Dr Peter Hollingsworth
He was also Clinical Senior Lecturer in Pathology at the University of Western Australia and a former Examiner in Immunopathology for the Royal College of Pathologists of Australasia.
Dr Hollingsworth was a leading specialist in Rheumatology, Immunology and Immunopathology. His clinical practice focused on systemic autoimmune diseases including systemic lupus erythematosus, vasculitis, allergy, immune deficiency and HIV infection.
BOARD MEMBER Stephen Wren
Stephen is engaged with Lupus WA as a parent whose daughter has been recently diagnosed with the condition. He has a commercial background focused on strategy and is presently the General Manager and Company Secretary of an unlisted public company.
Stephen has previous charitable board experience including five years as the Chair of the Board of Management of a private WA School. Stephen is a Graduate of Australian Institute of Company Directors and his qualifications include