The Lupus Group of WA

Privacy Policy

as at 21 December 2002

The Lupus Group of WA (Inc) recognises that your privacy is important and is committed to protecting your information.
The following information outlines relevant privacy issues for The Lupus Group of WA (Inc) to communicate as required by the changes to the Privacy Act 1988 (Cth) that impose new privacy obligations on the private sector.
We recommend that you keep this information for future reference.
This information will be reviewed periodically and updated with any changes.

Personal Information
1.1 The Lupus Group of WA (Inc) collects information when a member or an individual accessing our services provides us with personal details. This information may include your name, gender, date of birth, current and previous addresses, telephone/mobile phone number, email address, bank account or credit card details, occupation, and whether or not you or any member of your family have Lupus.
1.2 These contact details are kept in a secure system
1.3 If you chose not to provide personal information, we may not be able to provide you with the services you require or carry out The Lupus Group of WA's mission and objectives.

How we collect Personal Information
2.1 Directly from you, when you provide information by phone or in documents such as an application form
2.2 From third parties, such as related entities or your representatives
2.2.1 If you provide us with personal information about another person, it is important that you ensure that this person has authorised you to do so, that you have provided information to this person as to who we are, and that we may use or disclose their personal information as outlined in 4., together with the information that they may gain access to it.
2.3 From publicly available sources of information
2.4 From our own records.

How we use your Personal Information
3.1 Your personal information is collected to enable up so maintain our membership database, to provide a service to you and maintain our relationship with you.
3.2 We provide our members and interested parties with various information services by phone, fax, web posting, email and mail. These information services provide details of services and information available, upcoming events, as well as our newsletter, Lupus Lines. We, may also on occasion, provide external information through our fax, email, mail, or web site services, when that information is relevant to people with lupus or interested parties.
3.4 Your personal information may also be used to gather, aggregate and report statistical information and conduct client satisfaction research.
3.4 Your personal information collected overall is used to:
3.4.1 Fulfill The Lupus Group of WA (Inc) mission and objectives
3.4.2 Administer and manage those objectives
3.4.3 Research, develop and improve our services

When we disclose your information
For the purposes set out we may disclose your personal information to organisations outside The Lupus Group of WA (Inc) The organisations to which we disclose information include :
4.1 Our agents, professional advisors, including our accountants, auditors and lawyers
4.2 Government and regulatory authorities and other organisations, as required or authorised by law
4.3 All persons associated with The Lupus Group of WA (Inc) handling your personal information in the course of administering the objectives of The Lupus Group of WA (Inc) and providing services to members will be bound by confidentiality agreements. Your personal information will not be shared with third parties, other than that stated in 4.1, 4.2 without your consent.

Accuracy of Personal Information
5.1 The Lupus Group of WA (Inc) takes all reasonable precautions to ensure that the personal information we collect, use and disclose is accurate, complete and up-to date.
5.2 To ensure that the information held is accurate we recommend that you:
5.2.1 Contact us if any of your personal information is inaccurate, incomplete or out-of date.

Access to your Personal Information
6.1 You have the right to gain access to your personal information held by The Lupus Group of WA (Inc) and have it corrected if necessary. See our contact details below.
6.2 You may be requested to put your request for access in writing for security reasons and provide a Commonwealth identifier, such as a Medicare card, to confirm identity as the person in question. This identifier will only be utilised for the aforementioned purposes of identification.

Opt-out Facility
7.1 You may ask us at any time to not send you any further services by contacting us as detailed below.

How to contact us
If you have any queries regarding this information, please contact us as follows :
The Lupus Group of WA (Inc), Royal Perth Hospital, GPO Box X2213, PERTH WA 6847
ABN 37 076 414 365
telephone/facsimile: 08 9224 3144 email : lupus@wanet.com.au
Alternatively, you can write to our Privacy Officer at the above address.

Personal Information
1.1		The Lupus Group of WA (Inc) collects information when a member or an individual accessing our services provides us with personal details. This information may include your name, gender, date of birth, current and previous addresses, telephone/mobile phone number, email address, bank account or credit card details, occupation, and whether or not you or any member of your family have Lupus.
1.2		These contact details are kept in a secure system
1.3		If you chose not to provide personal information, we may not be able to provide you with the services you require or carry out The Lupus Group of WA's mission and objectives.
How we collect Personal Information
2.1		Directly from you, when you provide information by phone or in documents such as an application form
2.2		From third parties, such as related entities or your representatives
2.2.1		If you provide us with personal information about another person, it is important that you ensure that this person has authorised you to do so, that you have provided information to this person as to who we are, and that we may use or disclose their personal information as outlined in 4., together with the information that they may gain access to it.
2.3		From publicly available sources of information
2.4		From our own records.
How we use your Personal Information
3.1		Your personal information is collected to enable up so maintain our membership database, to provide a service to you and maintain our relationship with you.
3.2		We provide our members and interested parties with various information services by phone, fax, web posting, email and mail. These information services provide details of services and information available, upcoming events, as well as our newsletter, Lupus Lines. We, may also on occasion, provide external information through our fax, email, mail, or web site services, when that information is relevant to people with lupus or interested parties.
3.4		Your personal information may also be used to gather, aggregate and report statistical information and conduct client satisfaction research.
3.4		Your personal information collected overall is used to:
3.4.1		Fulfill The Lupus Group of WA (Inc) mission and objectives
3.4.2		Administer and manage those objectives
3.4.3		Research, develop and improve our services
When we disclose your information For the purposes set out we may disclose your personal information to organisations outside The Lupus Group of WA (Inc) The organisations to which we disclose information include :
4.1		Our agents, professional advisors, including our accountants, auditors and lawyers
4.2		Government and regulatory authorities and other organisations, as required or authorised by law
4.3		All persons associated with The Lupus Group of WA (Inc) handling your personal information in the course of administering the objectives of The Lupus Group of WA (Inc) and providing services to members will be bound by confidentiality agreements. Your personal information will not be shared with third parties, other than that stated in 4.1, 4.2 without your consent.
Accuracy of Personal Information
5.1		The Lupus Group of WA (Inc) takes all reasonable precautions to ensure that the personal information we collect, use and disclose is accurate, complete and up-to date.
5.2		To ensure that the information held is accurate we recommend that you:
5.2.1		Contact us if any of your personal information is inaccurate, incomplete or out-of date.
Access to your Personal Information
6.1		You have the right to gain access to your personal information held by The Lupus Group of WA (Inc) and have it corrected if necessary. See our contact details below.
6.2		You may be requested to put your request for access in writing for security reasons and provide a Commonwealth identifier, such as a Medicare card, to confirm identity as the person in question. This identifier will only be utilised for the aforementioned purposes of identification.
Opt-out Facility
7.1		You may ask us at any time to not send you any further services by contacting us as detailed below.
How to contact us
If you have any queries regarding this information, please contact us as follows : The Lupus Group of WA (Inc), Royal Perth Hospital, GPO Box X2213, PERTH WA 6847 ABN 37 076 414 365 telephone/facsimile: 08 9224 3144 email : lupus@wanet.com.au Alternatively, you can write to our Privacy Officer at the above address.