About us

• Our structure
• Our mission and priorities
• How you can help us

office location : Level 3, N Block ( adjacent to the Library and Medicine Information Service ), RPH, Murray St, PERTH   - see mappostal address : Royal Perth Hospital, c/- GPO Box X2213,   PERTH 6847
phone/fax :   (08) 9224 3144       email :   admin@lupuswa.com.au
website :   http://www.lupuswa.com.au/

( Currently the office is attended part-time - usually Tue-Fri. It is advisable to first phone if you wish to access material, since many of our volunteers are lupus sufferers and are therefore sometimes unwell. )

The Lupus Group of WA was formed in 1979 as a voluntary non-profit organisation, and became incorporated in 1986. The Group is self-funded ( receiving no state or federal funding ) and thus relies heavily on memberships, donations and fundraising.
The Group was formed largely out of a desperate need for education and knowledge of lupus, as at that time very little information was readily available. Also, there was a need to develop a forum whereby problems and common issues could be readily discussed.
Formation of the Group has allowed services to be developed over the years to provide support and information to people with lupus, their families, carers and doctors, in the way of self-help support groups, educational material through newsletters, library resources, fact sheets, booklets, and the provision of seminars by medical and health professionals.

The Group continues to provide support and education to people with lupus, their carers and the medical profession, while promoting in the broader community an understanding of lupus and its impact on those directly and indirectly involved.
The Group is active at state, national and international levels. The Graham Reece Trust Fund (1991) and The Gabriele Vitale Memorial Fund (1987), in conjunction with fundraising activities, have resulted in the attendance at relevant international conferences and funding of research equipment and projects in the Immunology Department of Royal Perth Hospital.

Mission :
Act as the principal resource for lupus patients, their families, doctors and the community to provide educational awareness, support and facilitation of research activities.

Priorities :

Education and Community Awareness :

To provide community displays, clinical education seminars, media updates, newsletters and information kits to the general public, medical and political community to raise awareness, early detection and understanding of lupus.

Support Services :

To act as a source of support and information to people with lupus, their families and friends.

Research :

To actively fund and participate in research to enhance management practices and discover the potential cause and cure for lupus.

• become a Member
• donations
• wills or bequests
• research funding
• volunteer in our office, education programmes or fundraising activities
• support group participation-a therapeutic process and develop new contacts
• attendance at our educational seminars
• support International Lupus Awareness Month in October each year.

Office Assistant

Clerical skills are sought to assist in office functions.

Marketing / Educational Awareness Assistant

Use your promotional skills to raise awareness of lupus and participate in our education campaign.

Fundraising Focus - Board Member

Recent experience in service based fundraising, preferably with health perspective. Attendance at monthly Board meetings ( fourth Tuesday pm ).

Lupus Support - phone line

Consider helping others with your communication skills and by providing support with our information resources.